Macmillan Cancer Support estimates that 2.5 million people are living with cancer in the UK, with this figure rising by three per cent each year.  Though more and more people are surviving cancer, many people experience long-term side effects caused by the disease and its treatment. More research is needed to understand the experiences and needs of those before, during, and after treatment.

The HORIZONS study, led by the Macmillan Survivorship Research Group at the University of Southampton and funded by Macmillan Cancer Support, is aiming to find out how a diagnosis of cancer and its treatment affects people in the short, medium, and long term.

 

About the study:

  • Researchers from the University of Southampton are leading the project and working with local cancer specialist teams.
  • We are currently recruiting approximately 3,000 patients over 3 years. NHS treatment centres are currently recruiting patients throughout the UK with a diagnosis of either breast cancer who are under 50 years’ old, gynaecological cancers (Cervical, Endometrial, Ovarian and Vulval Cohorts) or non-Hodgkin lymphoma (NHL) cancer type Diffuse Large B-Cell lymphoma (DLBCL or DLBL).
  • Recruitment will take place prior to treatment at participating hospitals across the UK – For more information about participating sites please see “Participating Sites” section on our website http://www.horizons-hub.org.uk/participating_sites.html
  • Please note in order to participate on the HORIZONS study you will need to be enrolled on the study by your local clinical team, in your standard care pathway.  Please remember to ask your NHS care team if they are running the HORIZONS study locally. 

Data will be collected using:

  • Questionnaires over the course of the HORIZONS Programme; before treatment starts and then again in 3 months, 12 months, 18 months and 2 years. After that point, study participants will be sent questionnaires once a year.
  • Routinely collected medical records data (information) – these will be collected before the patient's treatment begins, then at 6 and 12 month intervals, and then annually by research nurses at participating sites.
  • Some participants will be invited to take part in conversations about their experiences.

 

For more information about the HORIZONS study and study updates, please visit the following link:

http://www.horizons-hub.org.uk/index.html

Or follow @MacmillanUoS on Twitter