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Trial Title:
Susan G. Komen's ShareForCures
NCT ID:
NCT05654246
Condition:
Breast Cancer
Conditions: Official terms:
Breast Neoplasms
Study type:
Observational [Patient Registry]
Overall status:
Recruiting
Study design:
Time perspective:
Other
Summary:
ShareForCures (SFC) is a community-based participatory research registry, and its prime
objective is to engage participants representative of the United States breast cancer
patient population -including minoritized and historically marginalized people, persons,
or communities-to ensure the data researchers use to study breast cancer is as diverse as
the people touched by this disease. In doing so, researchers will have a better
understanding of breast cancer, and everyone can potentially benefit from scientific
advances and improvements in care.
Detailed description:
ShareForCures (SFC) will be a people-powered, data-driven breast cancer registry that
will provide a way for individuals from diverse backgrounds to participate in research
and enable participants' data to be used for breast cancer research. The overarching goal
of SFC is to create a robust research resource comprised of clinical, biological,
socio-behavioral, and other data from up to 200,000 people with breast cancer-including
minoritized and historically marginalized people, persons, or communities-to ensure the
data, researchers use to study breast cancer, is as diverse as the people touched by this
disease. In doing so, researchers will have a better understanding of breast cancer and
everyone can potentially benefit from scientific advances and improvements in care.
Criteria for eligibility:
Study pop:
ShareForCures is open to all individuals diagnosed with breast cancer, age 18 and older,
of any gender, and all racial and ethnic origins living in the United States.
Sampling method:
Non-Probability Sample
Criteria:
Inclusion Criteria:
- Individuals must be at least 18 years old. (Individuals in Alabama and Nebraska must
be over 19 and individuals in Mississippi and Pennsylvania must be over 21 to
participate).
- Individuals must have been diagnosed with cancer originating (or is suspected to
originate) from the breast.
- Individuals must be currently residing in the United States or a territory of the
United States.
- Individuals must be able to read and understand English.
Exclusion Criteria:
- Individuals under the age of 18 years. (Individuals in Alabama and Nebraska under 19
and individuals in Mississippi and Pennsylvania under 21 are not eligible to
participate).
- Individuals without a diagnosis of breast cancer.
- Individuals who are not residing in the United States or a territory of the United
States.
- Individuals unable to read and understand English.
Gender:
All
Minimum age:
18 Years
Maximum age:
N/A
Healthy volunteers:
No
Locations:
Facility:
Name:
Susan G. Komen
Address:
City:
Dallas
Zip:
75380
Country:
United States
Status:
Recruiting
Contact:
Last name:
Jerome Jourquin, Ph.D., M.S.
Phone:
1-877-465-6636
Email:
JJourquin@komen.org
Start date:
November 17, 2022
Completion date:
November 2032
Lead sponsor:
Agency:
Susan G. Komen Breast Cancer Foundation
Agency class:
Other
Source:
Susan G. Komen Breast Cancer Foundation
Record processing date:
ClinicalTrials.gov processed this data on November 12, 2024
Source: ClinicalTrials.gov page:
https://clinicaltrials.gov/ct2/show/NCT05654246
