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Trial Title:
Web-based Support for Family Caregivers of Patients With Advanced Cancer
NCT ID:
NCT05785494
Condition:
Family
End of Life
Cancer Metastatic
Chronic Illness
Conditions: Official terms:
Death
Chronic Disease
Conditions: Keywords:
Palliative care
Family caregiver
Web-based support
Intervention
Study type:
Interventional
Study phase:
N/A
Overall status:
Active, not recruiting
Study design:
Allocation:
Randomized
Intervention model:
Parallel Assignment
Primary purpose:
Supportive Care
Masking:
None (Open Label)
Intervention:
Intervention type:
Other
Intervention name:
Narstaende.se
Description:
Web-site with supportive information, videos and chat forum targeting family caregivers
of patients with life-threatening illness.
Arm group label:
Intervention
Summary:
For family caregivers of patients with advanced cancer, preparedness for caregiving is
crucial for maintaining health and quality of life both during care and after the death
of the patient. This project contributes to earlier research funded by the Swedish Cancer
Society, about an intervention that was delivered by a multi-professional team and proved
to be successful in promoting preparedness. However, such interventions are often costly
and logistically challenging. In addition, the Covid-19 pandemic has further
significantly raised the need for digital alternatives in healthcare. As a possible
solution, an evidence-based intervention, narstaende.se, has been developed consisting of
recorded videos of conversations between clinicians and family caregivers (actors),
linked to informational texts and a moderated chat forum. The intervention was pilot
tested during 2020 and 2021, exploring feasibility, content and family caregivers'
experiences. As preliminary results are promising, the intervention is taken one step
further and tested as a web-based intervention in a larger scale.
Criteria for eligibility:
Criteria:
Inclusion Criteria:
- Being a family caregiver, over 18 years of age, to a person with life-threatening
illness cared for in specialized home care.
Exclusion Criteria:
- Not being able to communicate in Swedish
Gender:
All
Minimum age:
18 Years
Maximum age:
N/A
Healthy volunteers:
No
Locations:
Facility:
Name:
Marie Cederschiöld University
Address:
City:
Stockholm
Zip:
100 61
Country:
Sweden
Start date:
September 1, 2022
Completion date:
December 31, 2026
Lead sponsor:
Agency:
Ersta Sköndal University College
Agency class:
Other
Source:
Ersta Sköndal University College
Record processing date:
ClinicalTrials.gov processed this data on November 12, 2024
Source: ClinicalTrials.gov page:
https://clinicaltrials.gov/ct2/show/NCT05785494
