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Trial Title: Quality of Care in Relationship to Aborted Cancer Surgery

NCT ID: NCT05808712

Condition: Cancer, Gastrointestinal

Conditions: Official terms:
Gastrointestinal Neoplasms

Conditions: Keywords:
cancer nursing, patient preferences, patient-centered care

Study type: Observational

Overall status: Recruiting

Study design:

Time perspective: Prospective

Intervention:

Intervention type: Other
Intervention name: validation
Description: Translation and validation design
Arm group label: Translation and validation design

Summary: Surgery is often a central curative treatment for gastrointestinal tumors. Surgical treatment of diagnosed cancer tumors is decided after a comprehensive assessment of the patient's physical status, radiological assessments and after careful evaluation at the multidisciplinary conference. Despite the careful preoperative assessment of patients for curative surgery, the planned operation may unexpectedly need to be canceled. Of the patients who were planned for curative resection for pancreatic cancer in 2021 in Sweden, 90% received the intended surgery, and 10% of planned surgery was canceled. The reason for this was disseminated cancer or locally advanced disease in which radical resection is considered impossible to carry out. A systematic review of knowledge reveals a significant lack of evidence regarding patient-centered research and aborted cancer surgery. The studies in the project have different study designs and methods, and include focus group interviews with staff, translation and validation of a questionnaire to measure care needs, estimation of supportive care needs and patient experiences. An improved understanding and knowledge of patients' preferences and needs is needed to design interventions that can improve health-related quality of life. This project is dedicated to studying patients undergoing aborted cancer surgery, with the aim of improving the quality of care and meeting patients' care needs.

Detailed description: The overall objective of this research project is to: - describe the patients experiences and assess supportive care needs following aborted cancer gastrointestinal surgery - increase knowledge of the healthcare professionals' experiences of aborted cancer surgery from a multi-professional and continuum of cancer care perspective - increase our clinical knowledge of patient preferences and healthcare professionals' perspective to develop tailored patient-centered interventions with the goal to improve quality of cancer care

Criteria for eligibility:

Study pop:
Cancer patients with different gastrointestinal cancer diagnosis

Sampling method: Non-Probability Sample
Criteria:
Inclusion Criteria: - >18 years - cancer patients with different gastrointestinal cancer diagnosis Exclusion Criteria: - not able to answer the questionnarie SCNS-SF34 in Swedish.

Gender: All

Minimum age: 18 Years

Maximum age: N/A

Locations:

Facility:
Name: Jenny Drott

Address:
City: Linköping
Zip: 581 83
Country: Sweden

Status: Recruiting

Contact:
Last name: Jenny Drott

Phone: +46709544489
Email: Jenny.Drott@liu.se

Facility:
Name: Department of Surgery

Address:
City: Linköping
Zip: 58185
Country: Sweden

Status: Recruiting

Contact:
Last name: Per Sandström

Phone: +467034058581
Email: per.sandstrom@liu.se

Start date: March 1, 2023

Completion date: December 31, 2028

Lead sponsor:
Agency: Linkoeping University
Agency class: Other

Source: Linkoeping University

Record processing date: ClinicalTrials.gov processed this data on November 12, 2024

Source: ClinicalTrials.gov page: https://clinicaltrials.gov/ct2/show/NCT05808712

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