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Trial Title:
The Investigation of Knowledge and Educational Demand of Sexual and Reproductive Health Among Cancer Survivors
NCT ID:
NCT05817981
Condition:
Sexual and Reproductive Health
Conditions: Keywords:
sexual and reproductive health
adolescent and young adult
knowledge，attitude/belief，practice
educational demand
Study type:
Observational
Overall status:
Not yet recruiting
Study design:
Time perspective:
Cross-Sectional
Intervention:
Intervention type:
Other
Intervention name:
Semi-structured interview
Description:
Before the questionnaire survey, 30 cancer survivors and 30 clinical oncology medical
staff will respectively participate in different semi-structured interview individually.
Arm group label:
Adolescent and Young Adult Cancer Survivors
Arm group label:
Clinical oncology medical staff
Intervention type:
Other
Intervention name:
Questionnaires set
Description:
Except for participants who participated in semi-structured interviews, other cancer
survivors who met the inclusion criteria will be asked to respond to the demographic
information sheet, the cancer related sexual and reproductive health knowledge and
attitudes questionnaire, and the access methods and demand for cancer-related fertility
information.
Arm group label:
Adolescent and Young Adult Cancer Survivors
Summary:
The goal of this observational study is to explore the current situation and needs of
adolescent and young adult cancer survivors for cancer-related reproductive health and
fertility information. The main questions it aims to answer are:
1. What is the status of sexual and reproductive health knowledge among adolescent and
young adult cancer survivors?
2. What is the difference between the educational currently available and needs of
cancer survivors? Part of the participants will be interviewed and then others will
fill out questionnaires.
Detailed description:
Cancer is a major public health problem worldwide. With the development of medical and
diagnostic technology, the number of cancer survivors worldwide continues to grow,
especially among adolescents and young adults. The global average cure rate for pediatric
cancer patients was 52%, and the 5-year survival rates of this population in developed
countries were about 80% in recent years. With this trend, more pediatric cancer patients
are transitioning into the ranks of adolescent cancer survivors.
The fertility intention is generally strong among adolescent and young adult cancer
survivors, more than three quarters of non-fertile cancer survivors have a high desire to
have children. However, most of them have an unfulfilled desire to have their own child,
which lead to high levels of fertility anxiety. What's more, studies have shown that
adolescent and young adult cancer survivors also have a great need for sexual and
reproductive health, but relevant forms of health care are rarely existed. Young and
adolescent cancer survivors are limited by the age of illness and generally lack regular
sexual and reproductive health education in schools. Due to the long and painful cancer
treatments, they also have difficulty in obtaining relevant knowledge or reproductive
health education from professionals such as doctors or nurses during cancer treatment.
The lack of communication between providers of survival care services and between
providers and survivors makes the sexual and reproductive health education much more
difficult for cancer survivors. Numerous studies have shown that a lack of knowledge
about reproductive health leads to increased psychological burden, low quality of life
and depression among young cancer survivors. Thus, it is critical to meet the
reproductive health literacy needs of young people and adolescent cancer survivors.
China is in the midst of an era of optimized birth and three-child policy, but the
fertility policy for cancer survivors is relatively poor. Survival care in China
currently focuses on the monitoring, prevention and treatment of delayed physical and
mental reactions caused by cancer itself and its treatment in adolescent and young adult
cancer survivors. Health promotion, such as sexual and reproductive health, or quality of
life for survivors is rarely discussed. To some extent, high-quality, multichannel
reproductive health counseling and health education may alleviate fertility concerns for
adolescent and young adult cancer survivors and improve long-term quality of life.
Therefore, on the basis of continuing to provide long-term care for adolescent and young
adult cancer survivors, it is necessary to increase sexual and reproductive health
counseling, health education and other services for this population. What's more,
providing sexual and reproductive health related knowledge through multiple channels can
improve the long-term quality of life for adolescents and adolescents.
Before applying interventions to help adolescent and young adult cancer survivors to
access to cancer-related reproductive health information, a study exploring their
intention to acquire knowledge and relevant factors must be implemented.
Criteria for eligibility:
Study pop:
The NCCS defined someone as a cancer survivor from the moment of diagnosis through to the
end of life.
Sampling method:
Probability Sample
Criteria:
Inclusion Criteria:
- Adolescent and young adult cancer survivors: ①be aged range from 15 to 39, ②have
been diagnosed with cancer and completed cancer treatment for at least 6 months, ③be
able to read, understand and communicate in Chinese.
- Clinical oncology medical staff: ①are clinician or nurse specialist in oncology,
②the average daily contact time with patients in clinical work is not less than 20%
of the clinical working time.
Exclusion Criteria:
- Adolescent and young adult cancer survivors: ①unable to complete communication due
to serious mental or physical illness such as deaf-mute, mental illness resulting in
unclear consciousness, ②be cancer recurrence or second cancer at screening.
Gender:
All
Minimum age:
15 Years
Maximum age:
39 Years
Healthy volunteers:
Accepts Healthy Volunteers
Locations:
Facility:
Name:
Sun Yat-sen University
Address:
City:
Guangzhou
Zip:
510080
Country:
China
Contact:
Last name:
Wei Xia, PhD
Phone:
+8618823359471
Email:
xiaw23@mail.sysu.edu.cn
Start date:
May 2023
Completion date:
March 2024
Lead sponsor:
Agency:
Sun Yat-sen University
Agency class:
Other
Source:
Sun Yat-sen University
Record processing date:
ClinicalTrials.gov processed this data on November 12, 2024
Source: ClinicalTrials.gov page:
https://clinicaltrials.gov/ct2/show/NCT05817981
